Wednesday, July 31, 2013

The Pool Incident

Here is the truth:

Having a child like Elisabeth isn't always easy.

Usually, when you have a baby, they grow and progress. They learn to be self sufficient. They learn to be independent.

That's not the case with my sweet little Elisabeth.

As she had grown it has become increasingly more difficult to care for her. Normally I don't dwell on it - or even mind it. I just love her and care for her and feel lucky all along the way.

But every once in a while a day will come where it just seems downright hard. Yesterday, for example:

I try to take my girls to the pool most days. With Elisabeth, this is a big production. Making sure that I have all of her supplies, and diapers, and then the added task of managing her in the pool - lifting her, carrying her, dealing with seizures, etc, etc, etc. Taking her to the pool is a big job. But I do it day in and day out to add variety and fun to her life; she deserves more than being stuck in the house.

Yesterday was a bit of a disaster. A disaster that involved a swim diaper that did not work properly and an entire water park that got shut down as a result. Aside from the fact that I was simply mortified that the pool incident happened, I was left carrying a poop-covered, sopping wet, seizing five and a half year old.

I came home and cried.

Later in the day, as I was talking about the pool incident with Alexandra, I made a comment about how conspicuous we are. Any other kid can poop in the pool and the next day they blend right in with the crowd. Not the case with us. We stand out; Elisabeth stands out.

"Sometimes I wish we weren't so noticeable,"
I said, thinking about the beauty of anonymity.

Immediately, Alexandra looked at me and said,

"I'm glad that people notice us because of Elisabeth."

My heart soared. I was so glad to know that Alexandra feels a sense of pride because Elisabeth is her sister.  She knows Elisabeth is special and feels the same honor I do in having her in our family.

I am blessed in life. Blessed to be a mother. Blessed to have these beautiful daughters. It's true that there are additional challenges that come from raising a child with brain damage, but I know that these challenges build strength and increase compassion and understanding. Elisabeth has taught me so much in life and about life. How lovely that a child who is limited in so many ways can be the greatest teacher of all.

It might be a few days before I brave the water park again, but I know that when I do I'll carry her in with my head held high; proud that she is mine.

Alexandra is right, Elisabeth is a wonderful reason to be noticed.

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Tuesday, July 30, 2013

Future Olympian 2020

Fast as a 
speeding 
bullet... 
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[Notice the grin on her face; Lorelai is made to race!]

Let me tell you something about Lorelai Leigh. Lorelai Leigh is fast. Oh so fast. She has never lost a race.  So when we heard about a track and field camp for kids her age we knew she had to participate.

The Chariots of Fire theme song was singing through my head as I watched Lorelai run. She beat every other kid by about a third of the length they were racing.

This girl has speed, I tell you!

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Track meet is on Thursday - I'll post results here on Friday!

Monday, July 29, 2013

Destination: Leavenworth

On Saturday we put the children into the car and drove to Leavenworth, a city here in Washington that resembles a Bavarian village. It is absolutely charming! Alexandra said she likes it better than Disneyland. Now that's saying something!
 photo f4ecfa8b-e265-455f-bb9d-16b10ae8d8f2_zpsf17c20fe.jpg  photo ba3880bc-b672-4afc-8cc8-129809f99ff2_zps38ca331a.jpg  photo bd4cba99-e5ed-4b7e-8b1a-bca87cae9070_zps7bb1c55c.jpg  photo d3d44fec-54dc-4b0a-bbac-9087a20a2c48_zps26d7143b.jpg  photo 9aebb387-f6c0-466c-998d-daf005be8179_zps043d3021.jpg  photo c131722d-dc1a-47cf-8147-f53f8f41d807_zps598494e3.jpg  photo 9069621a-a2ca-4569-a3c3-c789bf6bfb95_zps2db3d514.jpg  photo 07593fa9-2390-4c1b-92c7-b8b19e9c7084_zpsc985c7a8.jpg  photo 60ed4d2f-8414-4bf7-b448-3a77408ff954_zps8c0e7ace.jpg  photo 2506bc18-4526-4f7c-a89b-db10a8451f93_zpsd1b49da7.jpg  photo d48ce17a-45a5-4ac4-adac-30ec38f69e98_zpscfdf7b2a.jpg

During the month of July, they have Waldo of Where's Waldo fame hidden in 25 shops around Leavenworth.
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The girls picked up passports at the local book store and began the search, collecting stamps and signatures whenever they found one.

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Such a fun idea, no?

  photo 31a13194-df20-4ea0-b076-9098085e66e3_zps085031c0.jpg  photo b60495a6-0363-49ab-bff9-de9240a6481e_zps6f1553f9.jpg
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[Mid-day tube feeding.]

 photo 66f2738c-6081-4093-a64a-7c55519405bc_zps52e3d720.jpg  photo 1b612a1c-7a16-4530-b9b7-b2ccd34e926d_zps624d3753.jpg
[Behold, 116 flavors of taffy!]
[Too bad I'm not so fond of taffy.]
 photo bca8cff2-6ada-4b5d-8a4d-cdd23506268c_zpsc53512a0.jpg  photo 3d0615fe-ac55-4034-ab53-a67a7625cff9_zps452ceddc.jpg  photo b77d1ae4-4a68-4f42-9a8f-fa8d14a665f9_zps6faed662.jpg  photo 5dd284a6-362a-4db7-b909-c327b45cded3_zps221b5648.jpg
[Every town needs a maypole!]

[It went up and up forevah!]
  photo 3e99aad6-ae6b-40ae-bbbd-c2c4779cfd78_zps0f65eb59.jpg  photo b1e2a4a5-a650-4cd7-a8d6-7b7435f62ad3_zps37583b2e.jpg  photo 4ceefc3e-6a26-480f-a6d8-eea45a7ff73a_zpsd28c58d8.jpg  photo 0ebbd043-3fbf-4996-a431-610edde5a8f6_zps8f159f37.jpg  photo c0809480-9dcd-45b0-8878-e0ec7b3b2620_zpsb7934be3.jpg
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[This picture reminded me of Michelangelo's painting, The Touch.]

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Auf Wiedersehen!

Sunday, July 28, 2013

A Ponytail on the Queen

Elisabeth's hair is finally long enough to fit into a ponytail.
It's quite becoming on her, I would say.
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[If you look behind Elisabeth's ear you can easily see the outline of her shunt beneath the skin.]


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Friday, July 26, 2013

Doctor Sorenson

Welcome to the medical office of Dr. Lorelai Sorenson.

Now accepting new patients.

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Her notebook:  photo 81ea3173-a1c7-4251-83f9-136d642d00de_zps82ca3d2c.jpg

I love how she wrote 'prescriptcion'. The Spanish influence is apparent!

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My favorite is where it says:  

Giraffe - Constapated For 3 years.

How do my girls come up with these things? Ha!

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