Monday, April 24, 2017

My Heart is Happy

One Decade
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[Elisabeth's profile on her ultrasound picture at 16 weeks gestation and now, ten years later.]

April 24, 2007

On this day in 2007 my heart broke.

"She has hydrocephalus," they said.

And for the rest of the day I tried to remember (while sobbing) what the word was.

I can recall thinking how this word-that-I-can't-remember will now be part of my life forever.

Hydrocephalus.

I didn't think I was strong enough to face it.

I felt pain like I had never before experienced.


April 24, 2017

On this day my heart is happy.

She does have hydrocephalus...and epilepsy and cerebral palsy, and cortical blindness, and severe brain damage, and a feeding tube, and a wheelchair, and rods in her spine, and on and on...

And I can now easily remember each diagnosis and surgery and medication, and the many hospitals and doctors and therapists.

Elisabeth.

I was strong enough after all.

And I feel joy like I have never before experienced.

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