Monday, December 31, 2012

An Ode to 2012


When I think back to two-thousand and twelve, I will think of trials and triumphs. I will remember facing some of the most difficult experiences of my life...but finding the strength to carry on and conquer. 

What a blessed year it has been.
Photograph by Misty Alger

Friday, December 28, 2012

QE's Medical Monkey

It's no secret that Queen Elisabeth loves sock monkeys. It's also no secret that she has severe epilepsy. And those two facts combined made this the perfect Christmas gift for my sweet little QE:

A Medical Monkey


Because Elisabeth has seizures by the hour, we need to carry a Diastat pen with us at all times. This is used to stop seizures that go longer than five minutes. 


Well, her medical monkey is custom made to carry the diastat pen in its leg:


Brilliant, no?


I also love the fact that his hands snap together so that he can hang on the wheelchair right alongside her.


Shopping for a child like Elisabeth can sometimes be a challenge because she has no wants and very few when I see something like this I am absolutely over the moon about it!

Want to buy one? Click here.

Thursday, December 27, 2012

A Christmas Review

what joy!
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312_zpsd2e6f270 342_zps3b4d396d 

Twas merry, indeed!

Tuesday, December 25, 2012

Christmas Day 2012

Wishing you a warm and cozy Christmas.
The Sorenson Family

***Photograph by Charlene Hardy

Monday, December 24, 2012

The Beam - Part 1


Lorelai loves gymnastics.

And more specifically...Lorelai loves the balance beam.

So Alexandra - being the good big sister that she is - took some leftover fabric scraps, trimmed it down to official 'beam size', and taped it to the family room floor.

Voila!! An instant beam!

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A fine beam, indeed. 

I wonder though...if Santa might have something similar packed on his sleigh? 

In pink, perhaps? 

(wink, wink!)

Friday, December 21, 2012

Lisa's Home Show - Episode 13

Some musical Christmas cheer... 
...from our home to yours.  

***Please ignore the poor sound quality. I promise our piano doesn't really sound that horrific. 

****As I type was typing that above, QE had a big seizure. Her seizures have increased exponentially in the past week. She even had a five minute tonic-clonic (grand mal) at school yesterday. Time for VNS therapy


Thursday, December 20, 2012


Donald showed up last night with a sled for the children. 
Oh, the excitement! 

 Now we just need some snow...

 IMG_20121219_192543_zps50f58711 IMG_20121219_192653_zpsa79dbfda IMG_20121219_192720_zps950f5511 IMG_20121219_192933_zps5f35aa58 

And yes, if you are wondering, Lorelai always wears a swimsuit or leotard at home. 
That's what Olympians-in-training do. 


Wednesday, December 19, 2012

Forest Fairies

I think that Alexandra and Lorelai's new Christmas dresses make them look like forest fairies. 

Whimsical, no?
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 Forest Fairies or Christmas trees. 
 (Something of that nature...)

Tuesday, December 18, 2012

The Gig

The scene:
Roasters Coffee Bar

The entertainment: 
Alexandra on guitar 

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Alexandra started off by playing a few classical guitar pieces. She then finished by taking requests from the crowd and performing Christmas songs together with her teacher.

Thanks to all who came to support Alexandra at her first public performance!


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