Elisabeth was admitted to Sacred Heart Childrens Hospital today. An EEG done earlier confirmed that she is suffering from Infantile Spasms. She will be undergoing ACTH therapy to (hopefully) resolve this problem. Her first treatment was just given to her a few minutes ago. We'll see how she reacts.....the side effects are supposed to be pretty severe.
We still felt that this was the best option. If we chose not to go ahead with the therapy it could cause serious developmental problems. Not only would she stop progressing, but chances are that she would backtrack on the milestones that she has already hit. As the doctor put it, each of her milestones has been hard earned and it would be sad to see her lose that. Her neurologist actually showed me the print out of the EEG. After each spasm her brain literally shuts off and there is no activity for 3 seconds. This is not a good things when she has spasms continually for 3 to 5 minutes.
The hospital has been very accommodating. I get to stay with Elisabeth in her room. There is a bed for me as well as a private bathroom and shower. There is also a family room just down the hall with a refrigerator, microwave, and computer (so I can post these updates).
The ACTH therapy will continue for 2 weeks. If she reacts OK to it they will let me take her home in a few days and a nurse will come to our home twice daily to finish her treatments.
