Yesterday afternoon I was sitting in my comfy chair holding Elisabeth. She was being her usual, calm self; just sitting, staring at nothing, and thinking about whatever it is that sweet babies like her think about (probably a stocking full of Binky's).
I decided to turn on the TV to one of the music channels and get some Christmas tunes playing. So I reached past Elisabeth and picked up the remote control from off of the end table. As I pulled my arm back the remote went right past Elisabeth's eyes....AND SHE JUMPED!!! Really, truly! She was startled by it and gave a little jump.
Do you know what that means????? SHE SAW THE REMOTE CONTROL!!!! So I quickly moved the remote back in front of her face and gave it a little wiggle. She started laughing. I gave it another shake...she laughed even harder. I called Alexandra and Lorelai over, this was a moment that had to be shared. We shook and shook that little remote control in front of her eyes and she laughed as if it were the funniest thing she had ever seen (well, in this case the only thing she had ever seen). It was one of the most joyous moments of my life.
Donald got home a few minutes later and I tried to duplicate the experience for his benefit. Unfortunately, the vision had gone. I waved that remote like crazy in front of her cute chubby face, but she didn't see a thing. It just wasn't happening.
So I got to thinking about the moment of sight and how Elisabeth hasn't had a cluster of the Infantile Spasms in over a week. There must be a connection. Maybe her brain is finally getting the opportunity to heal itself. Maybe those few minutes of sight yesterday were the beginning of something more. Maybe there is hope.
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He can give us the miracles we pray for. My eyes are filled with tears of joy!
That is truly a miracle!! What a sense of hope reading that fills me with... I hope you guys have a truly wonderful Thanksgiving!!
Everytime I read your blog, I am enlightened and delighted by it. I love this post. I wish you many more such miracles.
Oh Lisa this is great news! I hope and pray that with more time she will reach more and more milestones!! Keep the faith, it is working!!!
Wow! No doubt there is a connection. This is really amazing.
I have chills!!! It is a miracle indeed. There has to be a connection.
And yes, there is ALWAYS hope.
Happy Thanksgiving Lisa and Co.!
That is awesome! What a great Thanksgiving you will have this year!
Also, I love your sidebar that sings Donald's praises. You're a good wife!
This is incredible! I'm so excited for Elizabeth and for the rest of you!
I kept getting goosebumps as this amazing story kept unfolding. What a wonderful experience! I hope it's only the beginning!
How wonderful! God is amazing. Happy Thanksgiving!
Nothing short of a Thanksgiving blessing. My heart lept also, thanks for sharing.
Your little ones tiny miracles make my day.
SO AMAZING!
The thought of her giggling like crazy makes my heart melt. I hope this miracle can be duplicated again soon.
Happy Thanksgiving.
Lisa, you always seem to be able to make me weepy. I am so happy and thankful that you share this amazing journey with all of us. Truly thankful. There is hope, for sure.
I'm in tears!!!! That's wonderful!!! Yea!
Oh wow! That's amazing!! What a wonderful experience for you - hopefully it's a sign of things to come. Miracles do happen. Hope you and your family have a wonderful Thanksgiving. Joanne x
I'm thankful too, and in tears right now. Knowing that Madelyn and Elisabeth are just a day apart it is so exciting to see every new development in Elisabeth! She's a fighter, and a strong little girl. I'm so happy for you to have that wonderful moment. Hopefully there's more like them!
Oh that is so wonderful!!!
I've got chills! that is simply wonderful.
What a wonderful Thanksgiving moment! You truly have a lot to be thankful for this holiday :)
Speaking from experience, there is a definite connection. And do not be discouraged if you cannot dupicate the moment again. Just relish in each and every second when it is happening...as it will happen again.
Happy Thanksgiving.
I have felt from the beginning that she would see one day. Since those sweet little eyes of hers are not damaged at all and it's that naughty little brain of hers that won't cooperate, I've always felt that she would see one day. I can't wait for the day when she can look at me and see my face and without me saying a word, she will know that it is grandma!
That is fantastic!! I want to tell you something so badly but you've got to know I don't mean it boastfully in any kind of way. I have gotten very specific in my prayers for Elisabeth, and her eye sight was one of those things.
We serve a miraculous God!!
I can just imagine the extra joy you must all feel in your home!!
*BIG hugs!!**
that is soo awesome im glowing with happiness for you guys i will keep praying and thinking of her to keep getting better and better hopefully you keep seeing more improvements or if not at least she has made a few which is great
How incredible. I'm so happy for you. There's always hope! and miracles!
Lisa, your blog is my daily dose of life in it's truest sense. You have a little bit of everything on here and I always feel better after reading your posts. I am so happy for your miracle.
How absolutely wonderful! And of course there is hope. As the amazingly well educated you knows, cortical blindness is a brain thing and the brain is remarkably good at re-routing things. We will pray that this is what is happening, but for now we'll be thankful for the glimpse that she has seen. And even more, that standing around that remote were her mother and her sisters, and so now you know that she has seen you too. That's a Happy Thanksgiving and a Merry Christmas all in one.
Wow! This is amazing and I am so happy for you and your family! here's hoping for more such moment - so happy!
What a tender mercy of a moment Lisa. I am so grateful that you had that moment in God's time. May you continued to be blessed with many more. Happy Thanksgiving.
Nothing could be better to read then that! Keep going little Elisabeth.
Lisa,
I'm crying and smiling huge right now! I'm so excited. God is in the business of miracles. On a side note, we saw Matthew's pediatric neuro opthomologist yesterday and he said exactly what you did- infantile spasms do cause interuption in the vision being able to be interpreted. We are concerned about Matthew's vision and he said EXACTLY what you just thought! He says if we can get the IS under control, his vision will probably improve. So I bet there is a connection! PRAISE JESUS!!
Tender mercies! What a wonderful moment that must have been. Way to go Elisabeth!
That is so awesome! What great news to start off the Holiday weekend. I can't stop smiling, I can't even begin to imagine what you must feel like!
Thanksgiving Miracle Indeed! Wonderful news.
Happy Thanksgiving from the Stamm house to the Sorenson house!!
Omg, I am so happy...I'm just sittin here getting ready to watch the macy's parade and I get this amazing news about elisabeth!!!!! I bet you guys were so excited I can see you now...I totally want to hear her giggle. Gosh, I love you guys...Happy thanksgiving!!!! We need to do dinner soon:)
I think she saw me today for a tiny bit.
This made me cry. I am so grateful for this experience for you guys. Keep up the good work Liz.
Lisa that is so great!! What a wonderful Thanksgiving treat! I have been so happy for you all and Elisabeth as I have read about her absence of spasms. I read this entry and thought, Owen had a second cord blood infusion, is that an option or something you have considered for Elisabeth? I was just wondering that if her brain is having some time to heal itself now, that perhaps the stem cells might help.
I have hope for Elisabeth as well. *hugs* and *love* to you!!
YES!
That is so great, Lisa. Thanks for sharing it. I love all the Christmas pictures of your girls, too! :-)
I'm so happy!
A true thansgiving miracle indeed.
that is so exciting lisa! elisabeth reminds me that sometimes the littlest things we take for granted, but that they can provide us with the most important lessons in life... that miracles do happen and to be thankful for all we have. what a precious, beautiful little angel you have. :] love you all!!!
We've been out of town for about a week. What a great post to come back to! Sounds like it was a magical day :)
that is amazing!!!! how heart warming! i hope this is a sign of more to come!!!!!
THIS gives me chills nd yes, MUCH HOPE!
I am encouraged by you...DAILY!
If I had my wish, I would live closer so we could be better friends!
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