Tuesday, June 26, 2012

Heading Home from Georgia

Elisabeth has been struggling this week. Before we left for Georgia, Elisabeth was having 'episodes' once or twice a day for an hour or so. But with each day that has passed she has gotten worse and worse. She screams and cries and thrashes for hours on end with no relief - for as much as 10 hours in a row.

We had her in a hospital here in Atlanta but there was nothing they could do for her; she needs to get back home to her medical team in Spokane. So they have armed us with a bottle of valium and we are going to board a plane today and hope to make it back to Washington with little or no incident.

Wish us luck. I'm nervous about flying all the way across the country with her in this condition. And I'm even more concerned about what's going on with Elisabeth.

Here is a small sample of what she has been experiencing:

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