Saturday, February 28, 2009
A Very Sick Little Girl
Thank you Susan for keeping everyone updated. Unfortunately, we don't have any real concrete answers yet.
When Donald went to get her out of bed this morning she was near lifeless. He actually thought she was lifeless because she was completely limp and non-responsive. A very scary thing for a parent to see.
She is slightly more alert....but very uncomfortable. She is running a fever and has been poked more times today than in the last 17 months combined.
Anyways, I had better head out. Thank you for all your prayers and well wishes.
Till tomorrow...
More on our little Elisabeth
One thing I forgot to mention in my earlier post was that Elisabeth had a fever last night. The doctors are theorizing that it's possible she could have had a Febrile Seizure. That is a seizure brought on by fevers.
I know something about them because my youngest son Shawn had them when he was very young.
They have also discovered that she has a urinary track infection, most likely that was the cause of the seizure. They have also determined that she has contacted some kind of viral infection as well.
The doctors will be keeping her in the hospital at least tonight. Depending on how she does tonight, will have a lot to do with when Donald and Lisa can take her home. Right now Donald is out with the girls. Their wonderful friend, Libbie, has offered to watch the girls for a while so that Donald will have more time to be up at the hospital with Lisa.
Thank you so much Libbie.
They love to be here at my house too, but at Libbie's house there are friends to play with. They get a bit bored after a while at my house.
So far we have all been able to make this, ONE big adventure, for the girls. They don't seem to be too concerned about their little sister. Which is good because Lorelai especially, has a hard time knowing her little sister is not doing well. Well that is all for now.
Except of course that you have maybe one more hour to enter my giveaway. Lisa has my blog on her sidebar. The Gothic looking one with the monk.
We will continue with updates as things change. Thanks for all your prayers and concern:)
And a Scary Time Was Had By All
This morning when Donald went to pick Elisabeth up from her crib, he noticed that she was limp and didn't seem to register that Daddy was there at all.
He called us (that would be my husband and me) (and yes that is proper grammar) anyway, he called us, I answered, he gave me a brief, briefing, on what was going on and asked if I could go and stay with the girls. I sent my husband Don, I had him get the girls and bring them to our house.
Okay, updates; I talked to Donald a few minutes ago and they are admitting Elisabeth to the hospital. After six agonizing tries, they were finally able to get a line into her. Elisabeth has very deep veins and this has always been an issue for her.
They have done a CT scan, they have given her a medicine to control the seizures she has been having. In fact one of the doctors thinks that she may have had a really big seizure while she was sleeping and these are the effects of it.
It's also being tossed around that her shunt could be malfunctioning. That has actually always been one of Lisa's biggest fears. If it's determined that it is indeed the shunt, then they will be transporting her to Spokane. That is where her regular pediatric neurologist is.
This is all the info we have so far. Either Lisa or Donald or I will keep updating on how things are going.
And one more thing, (Lisa has okayed this btw) If you haven't visited my blog, you should come check it out, I have a giveaway that ends today. You could be the lucky winner.
If this post sounds like I'm not taking this incident with the proper solemnity, don't worry. I just have a lot of faith where my sweet grandaughter is concerned. I know that in the end however life goes with our sweet baby, that it is what her Heavenly Father has planned for her.
That, and the fact that I am the perfect person to be there in an emergency because I am always able to stay calm. Just ask Donald about that sometime.
That's all there is for now. If there is any new information it will be updated as soon as possible. Please keep our sweet girl in your thoughts and prayers.
Friday, February 27, 2009
Thoughts on Influence
They were wealthy....crazy wealthy. A mansion-sitting-on-a-cliff-over-looking-the-pacific-ocean wealthy. Both parents were surgeons {if I recall} and there were 3 daughters; Elisabeth, Alexandra, and Christina. I studied violin from the same teacher as their children and I spent several summers attending an arts academy with their oldest daughter, Elisabeth.
I remember going to their home and being amazed by Elisabeth's bedroom...which should probably be called a suite due to it's gorgeous attached bathroom and beautiful built-in bookcases. But the most fascinating thing of all {to my then-13-year old mind} was her laundry chute. Ahh....that was the life. Just send the clothes down the trap door for the hired help to take care of {yes, there was hired help}.
The children all went to private school, took chess lessons, studied violin with a world-class teacher, travelled abroad and were trilingual. Yes, that's right, trilingual. Their father was from America, their mother from France, and they learned Spanish from their live-in nanny.
Everything about their high class life-style fascinated me. I can remember one occasion specifically when Elisabeth and I were at a music recital and she asked the hostess where the powder room was. 'The powder room'.....such sophistication!
As I became an adult I lost touch with Elisabeth's family, but I never forgot them. I remember them as I raise my own Alexandra and Elisabeth {sorry Lorelai, but your name came from a TV show}. And because of the influence of one family, I teach my children to say words like powder room and parlor, I have them studying the fine arts, and Alexandra is fast on her way to becoming bilingual {you should hear her speak Spanish!}. I don't have a mansion over-looking the pacific ocean....but that's not something I'm too concerned about {lol}. After all, influence should only go so far....
Thursday, February 26, 2009
Kids Will Be Kids
Wednesday, February 25, 2009
Responsibility
We also know that there is no better time to start teaching these principals than now. So we decided to initiate chores into the Sorenson household. The children are still quite young, so the chores we chose are age appropriate. At the end of the week they will be paid 25 cents for each time a chore was completed. With 3 chores each they have the potential of earning $5.25/week. However, a lazy week might not bring in such high revenue.
Now here is the part where Donald and I must use self-control. We are in the habit of spoiling our children. You know, they see a coloring book at the store that they want and we buy it because it only costs $1.99. Well, those days are over. From now on, all Sorenson children {except sweet Lizzy} will buy their own treats. So yes, they still might come home from the store with a coloring book that cost $1.99....but only if they purchase it with their own hard earned money.
This new system will accomplish several things. First, it will teach the girls the value of money. Second, they will gain a greater appreciation for their belongings because they will have worked to buy them. Third, Donald and I will be saving a ton of money by not splurging on their every little desire.
***I understand that some people may find $5.25 to be a rather high allowance for such young children. However, they will only earn that much if they complete each task, each day. Also, a total pay out of $10.50 is a drop in the bucket compared to what we usually spend on these girls each week. Trust me when I say, we are coming out ahead!
Tuesday, February 24, 2009
Improvements
By the way....I love cleaning. And I love organizing. And I love finding little ways to make our home comfortable and practical. And all of these things together mean Spring Cleaning to me. So beware of the month ahead. I have a lot of new ideas for our humble abode....and I'll be sharing them all here.
And....I've added a bit of blooming
color
to myself as I anxiously await Spring:
After
Do I dare share my little secret?
{That I purchased this lovely piece for $6.00 at Claire's}
It will adorn my finger from here on out.
Monday, February 23, 2009
Elisabeth's Big Night
Elisabeth enjoyed being the guest of honor at a benefit dinner for the Children's Developmental Center. We even bought her her first pair of shoes for the occasion. I realize that by 17 months of age most children have already reached that milestone, but Elisabeth has never had a need for shoes.
This, however, was a shoe sort of an occasion. So we took her to a local shoe store and got her sized. I think she was rather confused by the foreign objects being strapped to her feet. You see, she has never known anything but comfort. So I taught her a very important lesson: sometimes we must suffer in the name of fashion.
In the end, she was uncomfortable in her shoes, and I in mine. Like mother, like daughter.
My speech is a blur. I stood, I spoke, and I rambled on and on about the world's most miraculous baby {I can say that...she's my daughter}. I tried to touch on the important things; the initial diagnosis, struggles with epilepsy, and Elisabeth's restored vision.
I am deeply grateful for the Children's Developmental Center. They have been a constant support to our family over the last year and a half. When Elisabeth's therapists come to our home she lights up at the sound of their voices. And I have watched with amazement as they have helped her reach milestones that I thought were unreachable. What a wonderful program and a blessing to so many families. I am thankful for the opportunity that I had to share our story and I hope that by doing so others in the community were able to realize what a valuable resource the Childrens Developmental Center is.
Here are some pictures of our night:
Mother and daughter.
Our table.
Sunday, February 22, 2009
While The Camera Was Away
Separation Anxiety
So I woke up this morning and the first thing I thought of was that I didn't have my camera. And then I thought through how soon I could go over today and retrieve my camera {me and that camera are inseparable....just like me and Elisabeth}. At which point I walk out into the family room to see sweet little Lorelai, curled up into a safe little ball, sound asleep in the recliner. The perfect photo op!
No camera.
I'll have it back in my possession today and you can be sure that I won't miss another shot.
Saturday, February 21, 2009
Friday, February 20, 2009
Brainstorming
It's a tough assignment and I am frantically trying to decide what to say. What's most important? Where should I begin? So much has happened in the {almost} 2 years since we heard the word 'hydrocephalus' for the first time. There have been ups, there have been downs. We have seen her progress and we have seen her regress. There have been times when we have felt devastation. There have been times when we have witnessed miracles. We have worried. We have rejoiced. We have prayed. We have loved.
Thursday, February 19, 2009
Watering Cans and Ice Cream Cones
Wednesday, February 18, 2009
Childhood Rule #43
Tuesday, February 17, 2009
Valentine Review
'A' for Alexandra
A valentine for me...from Lorelai.
Friday, February 13, 2009
Musical Chairs
Thursday, February 12, 2009
Happiness is....
Wednesday, February 11, 2009
A Story About A Pair Of Shoes
Not a day has gone by that she hasn't worn those shoes. She has loved the sparkle right off of them. So several days ago I told her that she could no longer wear them; they were too far gone. With a sad heart she agreed, but asked that they not be thrown out with the garbage. That sounded fair enough to me. So they kept their home in the shoe closet, and Alexandra resorted to wearing her Nike's.