Today is a day devoted to bringing awareness to epilepsy - so put on that purple!
I would say that out of all the medical conditions that help describe Elisabeth, epilepsy - while not her original problem - has become her most problematic one. Seizures seem to rule her little world. They have stolen away her ability to move, to speak, and to eat. They frighten her; I look in her eyes as she seizes and see fear.
So today, those of us that deal with epilepsy try a little more to spread awareness. People around the globe are wearing purple. As it turns out, I don't have a stitch of purple in my wardrobe! But I was sure to deck Elisabeth out in the royal color - after all, she is a queen!
To learn all you could ever want to know about epilepsy, please click here.
In other news...
I walked Elisabeth down to the park the other day and took her on the swing. It was a little awkward...have you ever tried holding a six-and-a-half-year-old with a crooked spine on a swing? It's no joke! But I finally figured out a way to secure her and hold on while we gently swung back and forth.
I love Elisabeth. Earlier today I held her in my arms and watched her drift off to sleep after suffering a strong seizure. As I gazed at her perfect little face I was overcome with joy. She's mine! I am so lucky, I am so honored. She is a gift from above and I will spend the rest of my life making sure that hers is as happy, comfortable, and safe as possible.
