Wednesday, September 18, 2013

Back-to-School Night


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 Lorelai had a little booklet on her desk. Inside, I found these pages:
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Notice the family portrait - Elsa's there!

And look at that - I'm one of Lorelai's hero's!!!!

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Hawthorne  
Bears! 


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Alexandra, showing off her water cup:
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She tells me this little water cup is supposed to last her the entire year!
I said..."that's it, you're getting a plastic cup for your birthday."
 (I'm serious.)

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 Back-to-School night, the perfect time to take over the white board: photo 77b4b5de-c633-4836-864b-fe1448f2d178_zpsdfe2759b.jpg

Tuesday, September 17, 2013

Vagus Nerve Stimulation

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[Queen Elisabeth, coming out of a seizure.] 
Ever since she was 6 weeks old, Elisabeth has suffered from epilepsy. We have tried everything from drugs to diets, but there has been little success in controlling her seizures.

For Elisabeth, seizures have drastically effected her life. Once upon a time she could crawl, she could eat, she could say a few words. But seizures have stolen those triumphs from her. She is no longer mobile, she can no longer eat, and she can no longer say those precious few words (mama, home, and again.)

Lately though, seizures have done more than simply steal Elisabeth's developmental milestones - they are threatening her life. With each seizure (every one to two hours) she stops breathing. And there are times lately where she can't quite remember how to breathe afterwards. She chokes and coughs and gasps and struggles to find that familiar pattern of inhale, exhale. Last night, as she seized, there was terror in her eyes. As it came to an end, Elisabeth vocalized an almost panicked sound - as if saying, "help me".

Needless to say, something has to be done before a seizure steals her away from us.

Last week I traveled with Elisabeth to Spokane and met with one of her neurosurgeons. Together we decided that the next step is to try Vagus Nerve Stimulation (VNS). A vagus nerve stimulator is sort of a pacemaker for the brain. A device is surgically placed in the chest with a wire connecting to the vagus nerve in the neck. The VNS then sends regular pulses of energy to the brain. It is not clear why this works, but in many cases (about 50%) a reduction in seizure frequency and intensity has been noted. Maybe, just maybe, Elisabeth will be in that 50%!

We are working on scheduling the surgery right now and are hoping it will be sometime in the next few weeks. We would love to have it done before we head back to Ethiopia.

Details to come!

Monday, September 16, 2013

A Mother's Heart

On the other side of the world, in the Gambela region of Ethiopia, there is a woman named Seyba. I've never met her, and most likely never will, but we will always be connected in a very special way. You see, we share a daughter.

Seyba married young and had her first child at the age of 15. Two years later she gave birth to a second child, and several years after that, a third - little Elsa. After her husband died in a fall, Seyba simply could not provide for all three of her children; she had to make the difficult decision to relinquish Elsa to an orphanage.

Knowing of Seyba and her great sacrifice has added an extra layer of emotion to this adoption process. I have thought about a mother, far, far away, whose heart is aching. It has been hard for me to reconcile how the very thing that is causing her pain, is bringing me joy. So conflicting.

But amid those conflicting thoughts, I remember that we are both mothers - and I know what is in a mother's heart: love. Seyba loved Elsa so much that she was willing to say goodbye. What strength it must have taken to make that sacrifice; to let her child go. She is trusting me with Elsa - trusting me to raise her, and nurture her, and make sure she is safe and loved.

This is not a responsibility I take lightly. I owe it to Seyba to do everything I can to give Elsa the best life possible. And so I will. I will read her stories, and help her with homework. I will teach her to bake and sing with her at the piano. I will help her discover her talents. I will share in her joys and provide comfort when she feels sorrow. Indeed, I will be her mother. I will do it for Seyba.

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Sunday, September 15, 2013

Sisters!! Yay!!!!

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My girls are very, very excited about having a new sister.

Thursday, September 12, 2013

Thoughts on Compassion: Part II

When I set out to write Thoughts on Compassion, I had no idea that it would receive such a reaction. So many people with so many opinions! And - what shocked me the most - was that it became somewhat of a debate. To serve, or not to serve, that is the question (apparently!).

Due to the interest generated, I have felt prompted to write a brief follow-up post. In this post, I hope to make a simple clarification, as well as share a few new thoughts I have had since perusing my readers reactions.

First of all, when I wrote that post, I in no way meant to come across as anti-compassion or anti-service. In fact, I specifically wrote "I know it is a fault of mine - I am not proud of my harshness - but I also know that that is who I am."

And who I am is how I am inherently, like my mother before me. We are woman of little feeling. It is a strange way to be in a world that seems to run off of emotion. Indeed, there have been many occasions where my mother and I have talked about being misfits, and what an awkward feeling it is when everyone around us is crying, yet we cannot make tears come. I am simply wired differently, and that is why compassion is something I struggle with.

This does not mean that I do not appreciate compassion. Truth be told, I have been the recipient of compassion many times, especially during hardships with Elisabeth. I have had meals delivered, cards written, and phone calls sent my way. It is difficult for me to accept acts of love and service, but nevertheless, I am grateful.

So in the days since I published that post I have continued to think on the subject. I have compared myself to others, and here is what I concluded:

For me, it is hard to nurture close personal friendships and give small acts of service. However, I feel comfortable doing big things (like adopting a child from Africa, for example). On the contrary, I know someone who is the exact opposite. Emotionally she is fragile, and facing some of the harsher realities in life (like watching a legless child drag himself through a dirt road) would be too much. But if you are needing someone to lend a helping hand, or sit and listen to your worries, she is your gal!

What I am trying to say is that we all have different strengths and weaknesses. The key is to focus on your strengths and use them to better the world in which we live. I think that's why we are all created differently, each with his or her own gifts - so that when we come together we can create something magnificent. So let us all try to be the best we can be, live up to our potential, and to strive to learn and grow each day.

Heck...I think I'll make you that sandwich after all.

  photo 9cf24f65-afb7-4247-ad2d-4ee3cedc34bd_zps0dfa8761.jpg 
 [A picture of me and Elisabeth on her first day of Kindergarten. 
Because even if it is not related to the subject, every post is better with a picture.]

Tuesday, September 10, 2013

A Girl With Purpose

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Lorelai's passport arrived in the mail yesterday. I'm betting Alexandra's shows up today. I watched her eyes grow big as she opened the envelope that said,

To: Lorelai Leigh Sorenson 

From: The U.S. Government

I imagined how I would have felt with my very own passport at the age of eight and knew what she must be feeling: important and dignified; a girl with purpose. 

Oh, the adventure that awaits her!

Sunday, September 8, 2013

Thoughts on Compassion

Compassion is something I often think about.

I, admittedly, do not have a deep amount of compassion. In fact, I was told by a person close to me that I have less compassion than anyone they have ever known.

Which takes me back to my opening statement: Compassion is something I often think about.

Am I right in my assessment of myself? Was the person right in their assessment of me? By nature I am who I am, so regardless of any conclusions made, I don't regret the innate qualities of my being.

To have compassion is to feel for another in their hardships and struggles. It is also to have a desire to help alleviate their burdens.

Years ago, I was asked by the women's organization of my church to deliver lunch to an expectant mother on bed rest. I, myself, was the mother of a toddler and pregnant with my second child, but I readily accepted the task and prepared a sandwich and fruit. I drove to her apartment and knocked on the door, lunch in hand. When she answered, I looked beyond to the couch in the family room where her husband lay, watching television. I felt used. Why was I - a young pregnant mother myself - preparing and delivering lunch to a mother 'in need' while her husband watched television? And further more, why was she - the one on bed rest - answering the door?

That experience did two things to me. First, it made me realize that having compassion - to me - is not about making sandwiches. It is bigger. It is recognizing real need and being there to offer relief that will make a difference. Second, it has made me wary of accepting help. I fear abusing the beautiful thing that is compassion.

In the years since the sandwich incident, I have grown even more guarded in my ability to give compassion. This stems from personal life experience. I have given birth to a child with severe brain damage. I have watched her suffer through seizures, through pain, through surgeries. Most recently, I have traveled to Africa and seen people living in true poverty - with nothing. I recall seeing a boy with no legs, dragging his body through the dirt street on his hands. As I saw that boy, and as I have watched my own child struggle, my heart has ached. I have wanted to take their pain and whisk it all away. I have wanted to find a way to ease their burdens.

So is it that I don't have compassion? Or is it that I reserve my compassion for where it is truly needed? Often I find myself thinking, "Buck up, get over it, and carry on," when I hear someone singing 'woe is me'. I know it is a fault of mine - I am not proud of my harshness - but I also know that that is who I am. There is a time and a place for compassion; indeed, there is a time and a place for me to have compassion. But there is also a time and a place for personal responsibility and growth. It is through our struggles that we gain strength and character. So it is necessary that people learn to tough it out and carry on, despite the trials they face.

I might not be that perfect friend who checks in on you when you're sick or provides a shoulder to cry on if you're having a rough day. But I will be there when you really need me, I promise. You'll just need to make your own sandwich.  

Friday, September 6, 2013

Ribbons

Pigtails and ribbons go together. 
 They just do.

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Things I am happy about right now:
  • Baked Apple Pie Scentsy
  • Generous donations to our adoption fund (Thank you!!)

Thursday, September 5, 2013

Girl Scouts!

I would like to introduce you to the newest member of Troop 3519:  photo 360fc0fe-1136-49e7-8e40-97e67ed006a9_zps8042764e.jpg  photo ca4ce77f-00ef-41db-a681-68ba62a0b9c6_zpsa703fc0d.jpg  photo f8e30a7d-0508-46c9-8353-361813388017_zpsc984243b.jpg  photo 4407cc26-73f6-449d-9c32-2d3780336d0d_zpsc7b721b8.jpg 

Seriously, Alexandra was born to wear that uniform. 
She does preppy well, don't you agree?

Tuesday, September 3, 2013

Across the World

Sometimes I just stop and think, 
"I wonder what Elsa is doing right now?" 

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I cannot wait to bring her home!

Friday, August 30, 2013

Kindergarten!!!

I think back to April of 2007 when Elisabeth was diagnosed with hydrocephalus. As I heard the grim prognosis it was hard to imagine that this day would ever come:

Elisabeth's 
first day 
of kindergarten.

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A now, a quick lesson in 'plugging in a binky':
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And a happy, happy 
birthday to my brother, David!

Thursday, August 29, 2013

Farewell, Kindle

I don't put too much emphasis on 'stuff'. 

In fact, I am sometimes 'anti-stuff'. 

For some people Spring cleaning comes once a year, but for me it is a constant event. I don't like too many things around the house. I don't like a lot of clothes and shoes. I don't like things that I don't use. What can I say? I am practical.

However, I do have a possession that I treasure - my Kindle.

Donald gave it to me for Christmas a few years back and it quickly became one of my best friends. I carried it with me everywhere - from football games to hospital stays (because you just never know when you will have an opportunity to read).

A few days back I picked up my Kindle to read for a bit. That's when I noticed it. Broken. Unreadable.

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I was devastated. My Kindle traveled with me to Europe, to the Grand Canyon, to Williamsburg, to Nashville, to Hawaii, to Africa. And I traveled with it to places that existed within the writings it held. My Kindle took me to 1963 when Kennedy was shot. It took me through the rabbit hole with Alice. It put me on the battlefield with Katniss. It was on my Kindle that I read my favorite book, The Giver, for the first time. Oh, the adventures we have shared!

But now it is broken; my vast library trapped inside.

Now is not the time to buy a replacement; right now there are much more important uses for our money - like bringing Elsa home.  So I shall return to books. Actual books with covers and pages. Good thing I've got a few ;)



Wednesday, August 28, 2013

The First Day - 2013

Lorelai Leigh
~ 3rd Grade ~
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Alexandra Louise
~ 5th Grade ~  photo a5d01f12-8c33-40e3-83c1-1f01920ed7f5_zps5eef758e.jpg  photo 5ec12f9d-5565-4b9d-ba8d-36b0d6fd8e25_zps6794c93f.jpg  photo ebc5de72-2217-4d4a-b1b6-6403d5b593df_zps319db5fd.jpg  photo 3ae782fc-82d8-458a-a45e-e173778c2f52_zps62e821d9.jpg


Happy  
Back 
-to- 
School!

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Tuesday, August 27, 2013

A Back-to-School Tradition

The annual  
dipping of the 
apples...

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And then off to deliver them to their classmates!

Today is the first day of school...
 ...so crack open those books and start studying!


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