Yesterday, Elisabeth had a fitting for her new back brace. During the fitting they cut it back and trimmed it here and there. They even carved out a hole for her tummy/g-tube.
She hated every second of it:
Elisabeth's new brace takes her spine from a 75 degree curve to a 40 degree curve. It can also prevent further curving of the spine - if we can get her to tolerate it. We are starting off by having her wear it just an hour a day. Every week we will increase it by an hour.
The tricky part is balance. Elisabeth has always folded forward when sitting on the floor. With the brace on she can only sit straight up and so within about 60 seconds she tips over. She'll get there though, little by little (I hope!).
And now I present you Queen Elisabeth in all her gear:
Oh...and look!
Her new brace and her AFO's have matching butterflies! A girl must coordinate!
***My dear friend, Lee Ann, contacted me yesterday to tell me that her cousin was just diagnosed with metastatic melanoma to his brain and lungs. Please consider making a donation to help their family through this difficult time. Click here for details.
